What Hurts Most
Patient Pain Points
Pain points reveal three distinct clusters: emotional burden, fragmented care, and information overload.
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Cluster 1 — Emotional Burden
Emotional toll (37%) + Managing alone (24%) + Day-to-day symptoms (28%). The "invisible" load that no one sees.
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Cluster 2 — Fragmented Care
Repeating story (37%) + Coordinating doctors (20%) + Updating specialists (19%). A system-level failure.
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Cluster 3 — Information Overload
Tracking info (26%) + Understanding reports (13%) + Knowing what to do next (15%). The cognitive tax.
All Pain Points — % of Respondents
Emotional toll of health mgmt 37%
Repeating my story again & again 37%
Managing symptoms day to day 28%
Keeping track of info & reports 26%
Feeling like I'm managing alone 24%
Coordinating between doctors 20%
Updating all specialists 19%
Remembering what was said 17%
Staying current with research 15%
Knowing what to do next 15%
Understanding doctors' reports 13%
Knowing what questions to ask 11%
Combining data into a story 9%